CAH, Menses, and Medication – Study Update

In this post, we’d like to share some of the updates from one of our studies on congenital adrenal hyperplasia (CAH), menses, and medication. This study involved interviews with 6 women with CAH, and a literature review on menses presentation for individuals with CAH....

Support Groups

There are several support groups for CAH globally and social media groups that you can find and request to join.  From the UK Living with CAH has recently updated its web facing pages and infographics

Rare condition

CAH is a rare condition and while there is information about the condition, less is known about longer term impact on general day-to-day life. Some general information can be found at National Organizations for Rare Disorders. 

Across the life course

A research paper from Sweden examines the impact of CAH on a group of women over 18 years (13 women).  The shifting impact of CAH and how it impacts life in different ways and at different times in their life course is a later discussion aspect of the paper. Its open...