We would like to share the following opportunity on behalf of Psychosocial Studies Intersex – International (PSI-I). PSI International is a professional network focused on promoting psychological well-being in individuals with variations in sex characteristics. We...

We are pleased to share a recent publication from our research team who conducted an environmental scan and reviewed academic literature to identify health information pertinent to CAH and menstruation in order to inform health providers, increase patient education,...

In this post, we’d like to share some of the updates from one of our studies on congenital adrenal hyperplasia (CAH), menses, and medication. This study involved interviews with 6 women with CAH, and a literature review on menses presentation for individuals with CAH....

There are several support groups for CAH globally and social media groups that you can find and request to join. 

CAH is a rare condition and while there is information about the condition, less is known about longer term impact on general day-to-day life.

A research paper from Sweden examines the impact of CAH on a group of women over 18 years (13 women).