Our Thoughts

CAH, Menses, and Medication – Study Update

In this post, we’d like to share some of the updates from one of our studies on congenital adrenal hyperplasia (CAH), menses, and medication. This study involved interviews with 6 women with CAH, and a literature review on menses presentation for individuals with CAH....

Support Groups

There are several support groups for CAH globally and social media groups that you can find and request to join. 

Rare condition

CAH is a rare condition and while there is information about the condition, less is known about longer term impact on general day-to-day life.

Across the life course

A research paper from Sweden examines the impact of CAH on a group of women over 18 years (13 women).